Restless Legs Syndrome Foundation



Organizational Overview

Name
Restless Legs Syndrome Foundation
IRS EIN
56-1784846
Website
www.rls.org
Email
info@rls.org
Phone
512-366-9109
Address
3006 Bee Caves Rd.
Austin, Texas 78746
Social
  

Mission Statement

The Restless Legs Syndrome Foundation, (RLS Foundation), is a nonprofit 501(c)(3) organization that is dedicated to improving the lives of men, women and children who live with this often devastating disease. The Foundation's goals are to increase awareness, improve treatments, and through research, to find a cure.


The goals of the Restless Legs Syndrome Foundation are to increase awareness, improve treatments, and through research, find a cure.

As many as 1 in 10 men, women and children in the United States are affected by restless legs syndrome (RLS). That is 7.4 million people that are stricken by this chronic neurological disease. You are not alone!

For nearly 25 years, the Foundation has fought on behalf of the RLS community. We are the only organization currently funding research to find a CURE. We have accomplished so much thanks to our members and donors, and we will continue to make progress through education and funding research for a cure. The Foundation will pledge to put your gift to work on the following priorities:

* Improve our Quality Care Center Network
* Launch a Reinvigorated and Robust Research Program
* Rapidly Grow our Membership base to reach a broader audience

It is you who funds research and provides the Foundation with the programs to bring awareness and education of this devastating disease to the public and the medical/research community.

Impact Statement

It's the RLS Foundation members and donors who drive all the Foundation programs to increase awareness, improve treatments, and through research, find a cure for RLS!

Increase Awareness
Since its inception, the Foundation has been working tirelessly to increase awareness of this disease by raising its profile and educating the public and medical communities alike. The RLS Foundation is spreading the word about RLS -- a serious, yet treatable condition with a very significant impact on quality of life. By educating healthcare providers about RLS symptoms, diagnosis and treatment, the RLS Foundation helps patients receive the quality care they both need and deserve.

Improve Treatments
The Foundation continually strives to be the most reputable source of current information on RLS. Members of our renowned Scientific and Medical Advisory Board, composed of leading RLS experts from all over the world, have written many publications on the diagnosis and treatment of RLS. These include our comprehensive RLS Medical Bulletin, our most sought after Causes, Diagnosis, and Treatment for the Patient living with RLS and over 40 handouts and brochures for both patients and health care providers. These resources span a wide range of topics including concerns for surgery, depression, pregnancy and children.

Through Research, Find a Cure
The Restless Legs Syndrome Foundation Research Grant Program is the only program dedicated to supporting basic and clinical research on RLS... and its funded solely by donors like you! Since the grant program began in 1997, the Foundation has funded 42 research grants totaling nearly $1.6 million with the average grant amount just over $37,000. Ten of the recipients secured additional funding from government agencies, for total grant award dollars of over $10 million. Recipients have published findings in over 20 papers and several published books. In 2016 the Foundation launched a reinvigorated Research Grant Program which increased annual funding to $200,000!

Funding priorities include basic science leading to a better understanding of the disease, innovative approaches, interdisciplinary studies and support of promising postdoctoral candidates. The primary areas of funding have been genetics, epidemiology, iron regulation, neurophysiology, and animal models/treatment. The Foundation's Scientific and Medical Advisory Board reviews grant applications and selects studies for funding based on scientific merit and alignment with the funding priorities.


Needs Statement

In the next year, the Foundation pledges to put your gift to work on the following priorities:
Improve our Quality Care Center Network
Launch a Reinvigorated and Robust Research Program
Rapidly Grow our Membership base to reach a broader audience
Deliver educational programs on RLS treatments, coping strategies, and more

"RLS plagues many of the women in my family and I am grateful the Foundation provides support and guidance on treatment and coping mechanisms for those who suffer from RLS and medical professionals treating RLS." - L.

"As a friend of a strong young lady living with this disease, I am thankful to know that the RLS Foundation is there to provide support and trustworthy information for individuals and their families/friends who are affected by this disease. A truly great organization." - G.A.

"I have had RLS for over 10 years, and it has been getting worse. Having an organization that shares info and provides a forum for people helping people is invaluable to me. I have learned a lot and found some great ideas to try in an effort to control this ailment. Thanks to all!" - M.
- Awareness Day Ambassadors - help raise RLS awareness by reaching out to your social networks on September 23, Restless Legs Syndrome Awareness Day.

- Support Group Leaders - create an RLS support group in your community. Visit www.rls.org/get-involved/volunteer. If you don't see a support group meeting in your area, please consider starting one! If you are interested in leading a support group in your area, first review the description and then submit your completed application.

To sign up or inquire about any of these opportunities visit www.rls.org/get-involved/volunteer. For questions and additional information contact Chiara Corey at chiara@rls.org.
Amount: $2,500
Sponsored By: Anonymous

This year your Amplify Austin donation dollars will be matched up to $2,500 thanks to an anonymous donor!